Little Rachel has a BIG Secret to Share

Sep 19, 2017 -
Rachel Siew Suet Li

Little Book BIG Secrets writer Rachel Siew Suet Li did not let adversity constrain her in her quest to become an author. This unique young lady born with a rare degenerative genetic condition, unveiled her first literary offering today entitled “Little Book, Big Secrets – How to blend in when you were born to stand out”.

With the publication fully funded by the MIRM as well as the book launch being hosted by Microsoft Malaysia, Rachel Siew unveiled her new LinkedIn account featuring her book in the publication section. Through her account, LinkedIn users will be able to communicate with Rachel directly, sharing experiences in bringing out the best plus empowering oneself with endless possibilities.

Little Book BIG Secrets is a light-hearted yet touching book that illustrates Rachel’s wit, determination and resilience. It is about the everyday challenges faced by Rachel, whose journey was determined even before she first saw the light of day. Her inspirational quotes in the face of her many challenges will help readers approach life with a positive energy and fresh perspective.



“In this book, there are three significant points which reinforces my principles, which is to Inspire, to Motivate and to Empower. It is my hope to motivate and encourage other families who are in somewhat of a similar situation as mine. This may seem like a very difficult and winding journey ahead, but we can still make a difference in our lives,” said Rachel.

Speaking at the launch, Managing Director of the Make It Right Movement, Mr. Raja Singham said he was very proud of Rachel’s efforts. “This book is part of the continued effort to educate ourselves of how one person like Rachel can empower the lives of millions of Malaysians. Being her former lecturer, I have seen Rachel grow from a timid girl to a fully confident, independent yet humble young woman,” said Raja Singham.

Microsoft Malaysia’s Managing Director, Mr. K Raman also congratulated Rachel on the launch of her book. “I had the privilege of meeting Rachel recently where she shared with us her journey through determination, positivity and passion to achieve more despite her challenges. Her resilience in leading a life just like any other able-bodied person is commendable.
 
Rachel suffers from Mucopolysaccharidoses (MPS IVA) also known as Morquio Syndrome, a rare degenerative condition that affects her physically but not intellectually. In 2015, a drug called VIMIZIM, an intravenous enzyme replacement therapy was made available in Malaysia. This drug would have given Rachel the independence she had long yearned for. However, the answer to her prayers was costly. Treatment for this condition is in access of RM1.6 million per annum which she would have to undergo for the rest of her life. Despite her struggles, Rachel has found a way to help herself as well as to inspire others in need.

“Little Book, BIG Secrets – How to blend in when you were born to stand out” is now available for purchase via LinkedIn and through community effort via Facebook for the amount of RM39.90 only. Alternatively, you may contact Rachel Siew directly at rstf2016@gmail.com to purchase the book or for further details.

Full proceeds from the sales of the book will go to the Rachel Siew Trust Fund managed by appointed Trustees and is legitimately established with Alliance Bank Malaysia Berhad.

Founded in 2015, the Make It Right Movement (MIRM) is a CSR Initiative by BAC offering Malaysians the opportunity to be involved in social good. Leveraging on the collective resources of the BAC Education Group, MIRM collaborates with over 80 social good entities, and is involved in more than 200 charity and CSR-related projects and events annually.

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